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Memoirs of My Stroke Day IV: Trached Up

4/18/2025

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by Phillip Engelman

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The family is here today. It must be a Sunday.
It's not a Tuesday. People do not come on Tuesdays. Law and Order is on Tuesdays. And they don't come Wednesdays or Thursdays. Law and Order is on.
Chas vShalom, Gd forbid, they should take off of work for a loved one who almost died. But I wouldn't want them to feel any guilt.
It's been three days and nobody has been here. Just the nurse. The nurse is not related to me, which is why he comes. He gave me a sponge bath. Which isn't really even a bath. He thinks he's cleaning a dish. I was like a very heavy piece of porcelain. He sponged me till he saw suds, then he shined my forehead. He even looked at my foot to see if it sparkled. He did a breath on it, then rubbed it with a towel.
I'm guessing the bath would be more enjoyable if it was not given to me by Bob. Even so, I do feel clean. Kind of like fine china.

Maybe it was the trach that got me down. Just got that put in yesterday. I hope the family was praying. I like when people pray for me. Focusing on me in their relationship to Gd. 
Maybe they didn't see me because they were sitting in the waiting room together, praying. Or doing what our family does and waiting in the waiting room. We wait. That's what we do. We like to sit there and wait, and worry. We worry while not looking at each other and focusing on our phones. As long as we're worrying in the waiting room and texting, we feel like we're doing the right thing. Family member gets out of surgery and we leave. We did our thing, we waited. We leave. That's what Engelmans do.
We are very good at leaving. We do not wait around after we've waited. My mom left my dad at a wedding with no ride. She waited five minutes and left. She looked around, noticed it wasn't a waiting room, nobody was in surgery, she asked why she was waiting, she left. Dad was stuck in the Five Towns, trying to find a way back to Hackensack.

So now, I'm kind of feeling good today. I'm still out if it, but people are here. And that makes me feel good.
They're talking about me again. It feels good to have people around focusing on me. They're not praying. When they're here, I would rather them talk. I like prayer, but it's not good for discussion. I can't hear what they're saying to Gd. It's not a good conversation when they're mumbling incoherent Hebrew sentences to me.
They're just focused on me. But not praying. Thinking about, right now I can use some prayers. There's a huge tube coming out of my neck. I need the prayers right now. When you see a tube coming out of an orifice that was not created at birth, that's a good time to pray.

It's good to have the focus on me. I don't think I've got a birthday call for over a decade. At least the stroke got people thinking about Phillip.
I feel like I'm doing a Mitzvah, taking their focus off their daily grind. I'm bringing family together. That's what my stroke is. A family unifier. Our family comes together for sickness. Nobody shows up for Bar Mitzvahs. They show up for strokes and cancer. We unite for sickness. Our family connects with illness.
We love ailment. We need invitations for this stuff. "Thelma had another heart attack. Please come. We have pizza, lox and good schmeer in the waiting room. Please come and sit with us as we worry and text as a Mishpuchi."

And they're being decent and kind. Even my brother-in-law hasn't said anything stupid yet. Wait. He just mentioned the trach. It would take this fool to get everybody thinking about the trach. I thought nobody noticed. I was trying to be discreet about it. I tried telling the doctor the tube is too big. I knew people would notice the plastic coming out of my neck.
Now they're all talking about the trach. My cousin can't stand the trach. She just left. Can somebody tell her I'm disgusted by her too. Still using gel like it's the '80s.
And they are still not praying. Can't they tell I need prayers? Tefillah? Isn't a huge tube and human dissection a sign that they should start praying? What does my family need to start Davening to H'? Do they need to see the actual blood squirting at that moment? That is the one moment they would pray and not help. They would let the blood go and ask Gd to somehow stop it with a tourniquet. The Engelmans are a useless people. I would probably also stand there and start praying that somebody useful would come and take care of it.
And they are still talking about the trach and how I look like I have another limb coming out of my throat. Looking like a mouthclops. It was cute that my nephew came up with me looking like a dinosaur that he created. How about Tehillim?!

Why is nobody talking about Pesach? When is Pesach. What are we going to do? Who is cleaning the house?!
Shoot I just pooped. I hope they didn't notice. They're leaving the room. They know.

Now I’m alone again. I was doing good till they all started focusing on the trach. They all saw the trach. The thing coming out of me. It's embarrassing. If they were saying how cool it looked, I would've been good with it.
I know they're all talking about it on their way home. How do you see a trach and not talk about it. It's not like I dyed my hair and now they can't see the greys. It's an orifice that is now closed with a digital monitor.
Is the nurse coming? If they know I pooped, why are they not getting the nurse. Nurses don't come for poops. It's not like my poop shows up on the screen next to my oxygen level.
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You Don't Play Spit in the Waiting Room

1/30/2025

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by David Kilimnick

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Thoughts from a Waiting Room #4
What is wrong with my nephews?!
The waiting room is not the right place to play Spit. Spit generates too much excitement for those waiting to hear if their family member is alive.
If you're not nervous enough about having to be in the waiting room, hearing a loved one might die, watching a game of kids play Spit will push you over the edge. That is why kids should not be visiting the hospital and sitting around people. Kids should just not be around people.
My nephews are smacking the table, yelling "Oh no." Everybody was worried something happened. Every single person in the waiting room ran to the ICU unit crying, checking on their loved one.

Loss Can Be Devastating
Guy to my left is bawling. It’s his first day in SICU. Everybody cries the first day. After the first day, the family can care less. They've already let out their emotions. What will be will be. From that point on they leave it in Gd's hands. Prayers are less emphatic.
I can care less who stabbed your brother or who put out the hit. You are crying. I felt bad for the guy. He’s shedding tears. I look to my right, my nephew is cheering, "Spit! Got you!"
My other nephew starts crying to his dad, because he lost. That is not the right kind of crying for the waiting room; unless if it brings back flashbacks to times he lost at War. Maybe he was thinking about Uno. Loss can be devastating.

You Need Games
I think we're the only family who turned the ICU waiting area into a game room. One of my nieces asked if they had a PlayStation.
After the first week of crying, you start to need the games, to soften the intensity. Though you shouldn’t be pulling out fun ICU games that are too energetic, like hockey or Spit. You shouldn’t be playing tag in ICU.
The waiting room is more for games like Chess and Gin Rummy. Games that don’t make noise, where you look meditative, which also looks sad. Solitaire. Play solitaire.
The quiet game can also work. That's my favorite game to play with my nephews.

Just Don't Play
No. You don’t play Uno. No game with screaming. No Bingo in ICU. Yelling “Bingo” doesn't hit the right feeling of intensive care.
You play Bingo when you make it out of ICU and end up at the nursing home rehab.

Think About Who's Around
You don’t know when there will be a first dayer. I feel like I want to coach the waiting room rookies.
There's the right place for things. And it's usually Never. Dad is crying and next to him, a cousin is listening to a funny Mother’s Day video of little kids crying. It's not always the right place for Spit.
The greatest memory from sickness is when a cousin is shooting all of us their pictures from the family vacation in Hawaii. My father ZT"L responds, "I have cancer."
When the proctor croaked our regents, I asked a buddy if he wanted to play ping pong. I thought that was the right time for ping pong. When is the wrong time for ping pong? According to my buddy, "Somebody passing out and possibly dying is not the right time."
I pray the guy’s brother is going to be OK. Kind of hard to think about that though, when you're in the middle of a competitive game of Spit.
"Want to play Spit?" "My brother just got ran over and stabbed."

Meditation does look sad. Next time my nephews play Spit, I'll make sure they look meditative.
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Memoirs of My Stroke Day III: Holiday in the Hospital

12/26/2024

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by Phillip Engelman

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I am here. In the hospital. It's probably day 35. I'm working with day 3. Things move slower when they throw a trach in you.

I know it's Chanukah. People are celebrating Christmas.
Some lady came around with a Santa hat. That was the holiday. Nothing for Chanukah. When you're sick and you can't talk, you're Christian.
The chaplain came around. That was nice. He gave me a blessing and an ornament. He just hung the ornament on me. He figured, "The guy can't move. That's good enough." Then he started caroling.
I think it has to do with Engelman. They think it's Engelhardt and they start giving me sacraments. Right now, I'm worried whenever they bathe me. I don't know if they're trying to clean me or convert me. If I had more of a name like Goldberg, Irving Goldberg, people would know.
Maybe if my family was around and put up something in my room, other than a card from my boss, who is Christian, they might know I'm Jewish.

No Chanukah gifts. I got a Chanukah card that said "Get Well Soon." When you're in the hospital, all cards are the same.
It was a "Get Well Soon" card. The card didn't say, "We hope to see you at home soon." I don't think anybody wants to see me at home. You don't usually see the cripple at shul. They don't like seeing wheelchairs at synagogue. People see a guy in a wheelchair, with a trach and an oxygen tank, and they start to think Gd doesn't answer prayers.

Last days, people have stopped coming. They figure, they don’t want to me to
expect it. I might complain. I can’t talk!!!
They must be mad I missed the softball game. They were depending on me. Your team has got to be real bad to be hoping the guy in the wheelchair loaded on morphine can take over the game. Maybe they were hoping I would get walked. Or pushed.

Family stopped by for a minute. That was nice. They popped in to tell me they were going to a Chanukah party. They thought I would appreciate knowing they are not going to be with me.
There is this concept that you can't be happy in hospital. Then what do you expect from me. Stuck to a bed. Staring at a screen that has squiggly lines all over it, and numbers that nurses don't seem to like.
My whole family is convinced you can't celebrate in the hospital. The hospital is not the place for holidays. And it's not a place to visit your dad.
Forget about a party. They didn't even acknowledge the holiday in my room. Do I not deserve the right to get a Chanukiah. I would like the holiday candelabrum. I guess they think it’s dangerous to light when you have an oxygen machine. The priest is at least trying. He keeps asking the nurses when he'll be able to put a cracker in my mouth.

Where the hell is my family? I don't care it's a holiday. It's not like they have ever enjoyed the community parties. They complain about it all the time.
I guess it has something to do with ICU. Maybe the ICU is a downer. We'll see what happens when I'm out of here.
Wait. There's a waiting room here. My parents are loving the hospital. The waiting room is a family reunion. Everybody loves it. Friends pop over to those things. Nothing is more enjoyable for a family than surgery. Everybody gets together.
They should be celebrating a Chanukah party in the waiting room. Maybe that sounds off. Big parties in the waiting room and other families are coming in trying to figure out if the doctor is right and they should pull the plug. "You want some Chanukah Gelt? It's chocolate in silver foil."
I say celebrate it all. Every moment. I’m alive. Celebrate the stroke. And cry. People should cry a little. I want to know people are crying.
You can enjoy the holiday in the hospital. Put up streamers. That's all I want are streamers.

I've started thinking positive and appreciating the small things. That sounds cliche. But when your way of celebrating Chanukah is by seeing nurses in Santa hats, you appreciate it all. So let's count the Chanukah miracles. I coughed today and I didn't get a cramp in my stomach. That made me not want to die. The doctor didn't call me a vegetable or a Chanukiah today. The chaplain thought I was an ornament holder. Did I get any Chanukah gifts? Got a blood transfusion. I guess that was a gift. My butt got wiped today. That was appreciated. Nobody pulled a plug. Thank Gd. My TV is on. They haven't changed the channel from Weather in eight days. But at least no plugs were pulled on me. Maybe my family loves me.
People are caroling. That’s nice. I guess I’ll take those as Jewish songs.

If my kids came around, that would be a miracle.
"Can somebody hear me?! I want streamers!!!! I guess I am not saying anything. Can somebody hear my thoughts?! Steamers!!! It's a holiday. Steamers!!! I need streamers in my room. Stop looking at the machine. Put streamers on it."
We have to celebrate each moment on this earth by doing good. Even when we have it real bad, we need streamers. Maybe that's the morphine talking.
My prayers will be answered if people still appreciate me, and somebody gets streamers. Streamers!!! It's a holiday!!!!

I want my family to go to the shul Chanukah party. But I also want them to come here and tell me how messed up it was. I want them to celebrate with me too.
What I'm trying to say is holidays are about joy. Celebrating is about joy. Not Latkes that turn out to be soggy Tater Tots. That's how Mrs. Pinkowitz makes them. We all know it's Tater Tots. They're tiny round Latkes. The chaplain gets that. My family doesn't get that. And I need streamers!!! Streamers!!!
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